>Often, stories of early diagnosis and early intervention will be the most popular in mainstream news about autism. There will be triumphant headlines announcing that you can now detect it earlier and earlier, even showing signs in babies.
The way I see it, early detection is the ultimate Pandora’s Box for people on the spectrum. Those of us who are a bit more aged certainly remember the nearly unimaginable loneliness of living without a diagnosis, I myself was fortunate enough to be diagnosed at age 14, but some older ones did not obtain a diagnosis until adulthood, and many autistic adults today may be living without an official diagnosis.
It is not just a deeply crushing personal crisis, wondering why you are different and what makes certain aspects of life so painful compared to how others seem to experience it, but it is one that denies people the chance to seek assistance, accommodations, medical help, and, perhaps the most overlooked, a sense of belonging and peace of mind that comes with knowing. I now cannot comprehend not knowing I am autistic, the thought of being stripped of this knowledge makes me quake in the knees.
So some aspects of early intervention I look upon with envy. I think about all that I could have accomplished and how far I could have progressed, if only they had known the reason for my difficulties in school and socializing. How my deficiencies in mathematics could have been addressed, proper motivation given, educated in a language that was not alien to me. I can’t help but feel elated knowing that my own future children, should they be autistic like their mum, end up with so much more potential and support than I could have ever dreamed of.
The dark side to early detection though, strikes me each time a story about it is announced. Under that hope for making the world of people on the spectrum seem a brighter place, there lies a dark glimmering hint of unscrupulous, anti-neurodiverse applications. The earlier the detection gets, the closer we seem to get to the Holy Grail of organizations like Autism Speaks: A prenatal test for autism.
Let it be known that I am pro-choice. If a woman decided she was not up to the task of raising a child with autism, I would not object if she opted to choose an abortion.
But I still shudder at the possibility of a prenatal test for autism, because I am certain it would spell doom for neurodiversity. If a prenatal test were developed, and entered the standard battery of tests run on foetuses, it’s quite possible that the standard response to a positive autism detection would be abortion. With autism being so widely misunderstood, and the mainstream disablist view seeing autism as a tragedy that can only be dealt with through years of ABA and pain for the parents, teachers and doctors, not a thought would be given to the potential for a thriving, healthy existence a child with autism could possess.
It is not because I am against abortion. I am against the disablist notion that it is more ‘merciful’ to abort children with disabilities, rather than letting them ‘suffer’ through life. A lot of lip service is given to what a financial burden disabled children are to their parents. Very little is mentioned of what we as a society could do in the form of how we spend our tax dollars to ease this burden. In a society where all contribute to a better quality of life for all, disablist attitudes will no longer prevail out of a love for money more than quality of life for the vulnerable.
My other apprehension about early detection and intervention lies in the fear that too much emphasis will be placed on making the child “pass” as neurotypical as often as possible, without a regard to whether that is best for them emotionally or psychologically. I also worry that early detection may serve as a justification to isolate children on the spectrum from their neurotypical peers. Nothing worse can be done for both parties than to separate them. Neurotypical children who are not exposed to children with disabilities at a young age grow up to be adults who fear and pity people with disabilities, not understanding them and seeing them as less than human. If they learn from an early age though, that classmate Suzanne is different, not less, because she’s autistic, or has ADD, or is blind, or a wheelchair user, their whole perception of what it means to be normal and worthy of respect and friendship will be permanently offered.
That is one of the advantages of early detection, it will give children a sense of pride in being themselves early on, when applied scrupulously and properly. With the right minds and the right intentions, you don’t have to make sure a child “passes”. You can ensure however, that she will thrive, that something will capture her heart and her passion will lead her on a great path, that difference is celebrated rather than talked about in hushed tones.
It’s up to us. Early detection will not go away. The science has great power to change our lives, and our children’s lives. If you are autistic, or love and know someone with autism, it is your best interest to see to it that it results not in our demise, but a new flowering of neurodiversity that will bridge us all to the rainbow connection.